What Would You Give for your Kid Fears?

I’m sitting here listening to an Indigo Girls playlist on YouTube. It’s been a while since I listened to them, and oh man, how I’ve missed these beautiful melodies. They’re like the female version of Simon and Garfunkel. They make me want to learn to play the guitar. Their music reminds me of my carefree […]

Temporary Discomfort

I got my temporary lower bridge last week. It is a strange feeling to have something foreign in my mouth. Despite having had all kinds of weird apparatuses (I really feel like the plural of apparatus should be apparati, but apparently it’s not) in my younger days, I can’t say I welcomed the introduction of this […]

Dental Update…

Last time I wrote I was excited because I went through my dentist appointment without having my bridgework removed. My doctor has since acquired the necessary tools to remove my lower bridge, so that was how I spent this Wednesday morning. I made a quick video about it when I got home tonight. You can see […]

Never a Dull Moment

Things never quite end up the way I worry that they will. See my video for a recap of my dentist appointment and my run-in with the law today. Pardon the bad lighting, bad outfit and bad hair portrayed in this video. This is really just how I roll at home. https://youtu.be/LrxFZnZWY9Q

A Life in the Dentist’s Chair

On a regular day, the history of my mouth isn’t something I even think about, but the moment I walk into a dental office, that familiar smell nearly knocks me to my knees with dread. Memories of countless times before, sitting anxiously in the waiting room, flipping through magazines, wishing I was a model with naturally perfect teeth, wishing […]

Home Again

It always feels good to come home. Mom and I bade farewell to Colorado yesterday. We left the resort at 6:30 in the morning and drove to the Denver airport. The sun was in my eyes the whole way and I was irritable but I managed to get us there in one piece. We were […]

Colorado Trip, Day 8 (!!)- NFED Conference, Day 3: The Finale

Today started off with a photo shoot. Everyone from the conference was instructed to stand on the bridge that connects two buildings. We were all wearing our family conference t-shirts, with the exception of a rebellious few. Keep an eye on the NFED Facebook page for those pictures. After breakfast, Terri and I wo-manned the […]

Colorado Trip, Day 7 – NFED Conference, Day 2

I’m running out of steam on this one blog post a day business! I didn’t take many pictures today. This morning we had a motivational speaker who was interesting. He actually has a child with a rare disease too (though not ectodermal dysplasia). He had some people get up and share their experiences which […]

Colorado Trip, Day 6 – NFED Conference, Day 1

Once again, I woke up bright and early. I guess I really am an east coast girl. Or perhaps I would just be a morning person if I lived here. Today was the official start of the NFED conference, even though I felt like it started on Tuesday evening when a bunch of us were […]

Colorado Trip, Day 5 – Biopsy and Stuff

One of the reasons we came out to Colorado a bit early was because I volunteered to participate in a research study for EEC and AEC. It was really a minor sacrifice- I would let them take a small piece of my skin and they would grow it in a lab and study it. The […]