One of the reasons we came out to Colorado a bit early was because I volunteered to participate in a research study for EEC and AEC.
It was really a minor sacrifice- I would let them take a small piece of my skin and they would grow it in a lab and study it. The goal would be to learn more about the syndromes and potentially find a treatment for some of the skin issues people with AEC and EEC face.
Of course it wasn’t a big deal but I wasn’t exactly thrilled to have to visit a medical facility while on vacation.
There is something about the cold, sterile medical environment that triggers a cold, hard fear in my psyche. Even though I knew it was just a quick biopsy, it’s still just not a fun place to be.
Fortunately the whole process was pretty quick and I was able to get on and enjoy the day. Plus, it was pretty fun to hang out with my EEC pals in the waiting room and compare wounds afterward.
After a very warm walk back to the hotel, Mom and I were off to the science museum. Woo hoo! We saw such delights as the Owl butterfly and display after display of gorgeous minerals and gemstones mined right here in Colorado. I didn’t take many pictures (I’m not even sure if you’re allowed to take pictures), but here are a few highlights.
We also saw a show in the planetarium, which was fun. As we were leaving, we caught a glimpse of Dog the Bounty Hunter walking into the museum. Weird!
This evening we got down to the resort where we will be staying for the rest of the week. Some of us went out for a delicious pizza dinner.
Tonight we tried to hang out a bit at the resort, but after various issues with room arrangements and the general tiredness of one and all, it was decided we would return to our rooms and slumber.
Tomorrow the NFED conference begins!