Vegas Trip… Part 1

Yesterday morning I said goodbye to the pretty fall colors (and my pretty little Mazda) and embarked on a two-flight journey to Las Vegas, Nevada to help out with a trade show for work. My flight to Chicago was uneventful. Like, really uneventful. It was cloudy so there was nothing to look at out the […]

Shipping Up to Boston

This past weekend I made a quick trip to Boston to visit my youngest brother and some of my favorite NFED friends who were visiting from Canada. Before I tell you about that, I must mention that this is the 100th post on EEC Chick! Party! Also, I have not forgotten about the Five Life […]

Back to the Earth, I Feel It

Bonus points to anyone who can identify the song lyrics in the title. It’s been over a week since we had our family camping trip in Vermont, but I wanted to document the experience for myself and all my fans. (Hi Suzanne, Terri and Janet!) This post is going to be mostly pictures, because I took […]

Home Again

It always feels good to come home. Mom and I bade farewell to Colorado yesterday. We left the resort at 6:30 in the morning and drove to the Denver airport. The sun was in my eyes the whole way and I was irritable but I managed to get us there in one piece. We were […]

Colorado Trip, Day 8 (!!)- NFED Conference, Day 3: The Finale

Today started off with a photo shoot. Everyone from the conference was instructed to stand on the bridge that connects two buildings. We were all wearing our family conference t-shirts, with the exception of a rebellious few. Keep an eye on the NFED Facebook page for those pictures. After breakfast, Terri and I wo-manned the […]

Colorado Trip, Day 7 – NFED Conference, Day 2

I’m running out of steam on this one blog post a day business! I didn’t take many pictures today. This morning we had a motivational speaker who was interesting. He actually has a child with a rare disease too (though not ectodermal dysplasia). He had some people get up and share their experiences which […]

Colorado Trip, Day 6 – NFED Conference, Day 1

Once again, I woke up bright and early. I guess I really am an east coast girl. Or perhaps I would just be a morning person if I lived here. Today was the official start of the NFED conference, even though I felt like it started on Tuesday evening when a bunch of us were […]

Colorado Trip, Day 5 – Biopsy and Stuff

One of the reasons we came out to Colorado a bit early was because I volunteered to participate in a research study for EEC and AEC. It was really a minor sacrifice- I would let them take a small piece of my skin and they would grow it in a lab and study it. The […]

Colorado Trip, Day 4 – Celestial Seasonings

Today we started off with a trip to Celestial Seasonings. It was not as fun as the Ben and Jerry’s tour, but perhaps that’s a given. It was nice though. Some of the interesting things I learned were: 1. Herbal tea is technically not tea if it doesn’t contains actual tea leaves. It’s an herbal […]

Colorado Trip, Day 3 – Pikes Peak by Bike

This morning I woke up at 3:30. I rolled over and went back to sleep for a bit, but the dark corners of my mind harbored questions about the day ahead… Would I be stricken with altitude sickness upon reaching the top of Pikes Peak? Would I lose control of my bike and plunge to […]