Tag Archives: hope

The Hermit Life

I haven’t felt much like writing lately. I have felt more like burrowing deep into my home and not coming out for an indeterminate amount of time.

I suppose we could blame my melancholy on the time of year, although I am hyper-aware that each successive morning and evening is a little brighter than the one before, thanks to the ever-changing rotation of the earth’s axis. Yeah that’s right, I have a science degree.

Perhaps we can blame it on my mom’s cancer, because you know I’m already milking that for all it’s worth. “Sorry, that thing you invited me to? I can’t go, because… my mom is sick.”

Meanwhile, she’s 300 miles away, so it’s not like I can do much for her from my own home. But, I did go up to visit her last week. At this point my function in visiting her is to bring tidings of comfort and joy. I brought books, magazines, games, and of course, my winning personality.

We shared a hermit-like existence for a few days, which are my favorite kind of days. Introvert life! We sat around reading and drinking tea, slowly plodding away at a puzzle, and when she took her naps, I worked on my artsy things or took the dog out for a walk. In the evenings, we’d enjoy dinner while watching a movie. It’s the lifestyle I wish I could live every day. Except for the cancer part, of course.

A blue evening on Lake Champlain

I’ve been thinking a lot lately about what to do next. I’ve been trying to nurture my artistic side as much as I can, and my writing, although many days it’s a challenge to come home from work and plop down in front of my laptop, or at my art table, although it pains me more when I neglect to do so.

Lately, I feel like I am frustrated so much of the time. I feel like there’s never enough time to do the things I want to do. (See above paragraph about reading, puzzling, making art and taking long walks…). I feel like there’s got to be a better way to balance my life.

Speaking of balance, one thing I have done to improve my life lately is join Weight Watchers. I lost 2.4 lbs in the first week, so that was cool. I’ll have to write more about that in another post because my eyes are ready for bed now. It looks like tomorrow will be a work-from-home day, thanks to the storm that’s coming.

So stay tuned, friends, and let’s venture into the unknown together… or, we can just hang out in the same old, predictable middle-class lifestyle…  eww, just kidding. Let’s check out the unknown.

A Call for Healing Vibes

Last night I spoke with my sweet friend Norma, who is featured in the documentary posted here.

It was so nice to hear her voice again. I don’t really talk with people on the phone much anymore, since most everyone is available by Facebook, email or text. I’m thinking I’m going to have to change that, because talking with Norma made my heart soar and brightened up my day. (Is that corny? I don’t care, it’s true!)

Norma is has been dealing with a corneal erosion for months now. Others with EEC have had similar experiences. Because we lack the proper glands in our eyes, our eyes do not produce adequate lubrication and therefore cannot heal as easily as the eyes of people without EEC.

Her erosion is so bad that she can’t see and has lost her independence. She has been staying at her sister’s house instead of her own. Of course she is unable to use the computer and so has not been able to keep up with people on Facebook or email.

As of this week, she’s begun using a different eye drop and it seems to be helping. Hopefully it is exactly what the cornea needs to heal and stay healed.

I just wanted to put a call out to all my NFED friends and friends of this blog to say a little prayer, or send some positive vibes in Norma’s direction. I am keeping my fingers crossed and my thoughts uplifted that her eye will heal soon.

So much love, Norma!

The MacDonald clan and me at the 2012 NFED Conference in Orlando
The MacDonald clan and me at the 2012 NFED Conference in Orlando