2017 NFED Family Conference Recap

The 2017 NFED Family Conference has already come and gone – in a flash, it seems. This year it was held in Falls Church, VA, which is right outside of our nation’s capital – Washington DC. The day before conference was Advocacy Day, and many NFED families went to Capitol Hill to speak with their […]

Dental Update…

Last time I wrote I was excited because I went through my dentist appointment without having my bridgework removed. My doctor has since acquired the necessary tools to remove my lower bridge, so that was how I spent this Wednesday morning. I made a quick video about it when I got home tonight. You can see […]

Colorado Trip, Day 7 – NFED Conference, Day 2

I’m running out of steam on this one blog post a day business! I didn’t take many pictures today. This morning we had a motivational speaker who was interesting. He actually has a child with a rare disease too (though not ectodermal dysplasia). He had some people get up and share their experiences which […]