Throwback Thursday: In My Heart Deeply Berred…

This throwback is true heart-warmer for me. There is no date on the paper so I don’t know exactly when it is from, or even why it was written in the first place. I have had it for a long time, tucked away in a box entitled “A Few of my Favorite Things”. I vaguely remember […]

Erin Gets a Hearing Aid

I just got a chance to watch this video. It’s about a little girl with AEC, (another form of ectodermal dysplasias) getting her first hearing aid. I met Erin and her mom and grand mom at the conference. We only chatted for a short time but I can tell they are awesome people. I hope […]

What My Friends Are Up To

Well, so much for writing more frequently! I’m still on my Facebook fast, but clearly that has not magically resulted in me writing more. One thing at a time though, right? Right now I’d like to share with you what a couple of my EEC buddies are up to. My friend Terri has started blogging […]

Shameless Self Promotion

Opening Night at the 2014 NFED Family Conference. Each family was tasked with making a family crest or banner to display on a wall in one of the shared spaces. I began creating a flag to represent my blog – EEC Chick. As I looked around the table at the other EEC Chicks around me, […]

The Umbrella Story

What super power would you have? Why, invisibility, of course! Sure it would be nice to fly, or shoot lasers out of my eyes, but to be invisible . . . now that would be really cool. One spring afternoon in Music class, we were learning a song about the rain. On the handout there […]

Color Me, Don’t Color Me

The year is 1991. Kids really do wear their hair in aqua-net-encased creations of spiked mullets and towering bangs (the grunge wave has not yet reached our suburban landscape). My personal soundtrack consists of anything REM, the Bryan Adams’ single “Everything I Do”, and Disney’s Little Mermaid soundtrack. I think I am turning out to […]

Swimming with Suzanne

Water. How I have always loved water. Whether it be in a bath tub or a swimming pool, I want to be in it. Swimming allowed me to be weightless and graceful, while on land I was clumsy and awkward. Being in the pool was like being in another world – one where I never […]