The Umbrella Story

What super power would you have? Why, invisibility, of course! Sure it would be nice to fly, or shoot lasers out of my eyes, but to be invisible . . . now that would be really cool. One spring afternoon in Music class, we were learning a song about the rain. On the handout there […]

Exploring Ectrodactyly with EEC Chick

As the name implies, ectrodactyly is a prominent feature of EEC. Ectrodactyly just means missing fingers (or toes). If you ask me about it, I’ll say that I don’t think about ectrodactyly much and that it really hasn’t been that big of a deal in my life. Which in some ways is true. It has not caused me much physical […]

Happy Birthday to my Mommy

Today is my Mom’s birthday. Mom and I go way back. As her firstborn, I got to break her in to the whole motherhood thing. This arrangement worked out pretty well for me. (I’m just a little bit spoiled.) For her, I may have raised her blood pressure a bit but overall I think what […]

Swimming with Suzanne

Water. How I have always loved water. Whether it be in a bath tub or a swimming pool, I want to be in it. Swimming allowed me to be weightless and graceful, while on land I was clumsy and awkward. Being in the pool was like being in another world – one where I never […]

Deaf as a post – Part 1

For about a week now, I’ve been 85% deaf (as opposed to my usual 50%). I seem to have acquired an infection or a swelling or some thing which has caused my good ear to feel clogged and useless. I’ve been walking around feeling like I’ve just jumped into a swimming pool and the world is […]

Dear Diary, Thanks for keeping all my secrets. Love, Heather

When I was 10 years old I was given this little pink diary for Christmas. I had no idea then just how significant a role this little book (and the dozens more that would follow) would play in my life. As a 10-year-old, I wasn’t even really sure how to keep a diary. All the […]

Dr. Hulnick

My first plastic surgeon was Dr. Hulnick at St. Christopher’s Hospital for Children. I had 5 surgeries with him, the first when I was barely 3 months old and the last when I was 6. I don’t remember what he looked like, but I do remember him being a big part of my early life. […]

The first post…

This blog has existed for many years in my mind’s eye. I have been putting it off for one reason or another, but the biggest reason is that I am hesitant to open myself up to criticism and judgement when it comes to something so personal. So bear with me as I slowly peel back […]