Major Life Influence #2: Moving to Vermont at 16


This is the second of a five-post series of major life influences. See here for where it all began, and here for the first major influence. The second major life influence was when my family left the Philadelphia area and moved to rural Vermont the summer I turned 16. We had only discovered Vermont a year … Continue reading Major Life Influence #2: Moving to Vermont at 16

Major Life Influence #1: Being Raised Christadelphian


This is the first in a 5-part series of my major life influences. Of course having EEC is a big influence, but since this whole blog is pretty much dedicated to that, I figured I'd choose 5 other things to talk about. The first major influence on my life (aside from being born with EEC, … Continue reading Major Life Influence #1: Being Raised Christadelphian

 Colorado Trip, Day 7 – NFED Conference, Day 2


I'm running out of steam on this one blog post a day business! I didn't take many pictures today.     This morning we had a motivational speaker who was interesting. He actually has a child with a rare disease too (though not ectodermal dysplasia). He had some people get up and share their experiences which … Continue reading  Colorado Trip, Day 7 – NFED Conference, Day 2